On Inclusive Research Design

By: Rosie Waxman

Participants should reflect real-world diversity, including those with disabilities, to accurately represent a target population and assess a study's effects.  Here are some tips on how to make your research accessible to participants with disabilities:

Universal Design

Ensure questionnaires, consent forms, and research tools are accessible in multiple formats (e.g., braille, large print, screen reader-compatible) to maximize usability for all participants, regardless of disability.

Flexible Protocols 

Design adaptable research protocols from the outset, including extended time for tasks, use of assistive technologies, permission for support persons and options for remote participation.

Sign Language and Captioning

Provide sign language interpreters or real-time captioning for Deaf or hard-of-hearing participants.

Simple Language

Use direct, high-frequency language at a slow-to-normal speech rate and have low-tech Alternative Augmentative Communication available.  Be patient.

Physical Accessibility 

Ensure laboratories are usable by all by providing ramps, elevators, accessible restrooms and wheelchair-friendly seating arrangements.

Targeted Recruitment

Collaborate with disability organizations and advocacy groups to ensure a diverse participant pool, tailoring recruitment materials accordingly.

Informed Consent

Ensure participants understand the nature of the research and associated risks by providing consent forms in multiple formats, using simple language or offering a verbal consent process completed with images, contingent upon participant competency.

Maintaining Confidentiality

Ensure accommodations, like sign language interpreters and laboratory staff, uphold participant privacy by following confidentiality protocols, like assigning participants identification codes and working in a secure environment.

In General…

To ensure an inclusive lab environment, conduct regular training on disability awareness and accommodation practices.  Establish a feedback system for continuous improvement of accommodations, and develop inclusive emergency protocols considering everyone’s needs.